Category: health

My Top Teas of Lockdown
food · tea

My Top Teas of Lockdown

The Sickly Mama1 Comment
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I absolutely love tea and I have a tea for every occasion. If you’re anything like me, you’ve been drinking endless cups of tea while stuck at home during the coronavirus lockdown. I thought therefore that I should do a rundown of my top teas of lockdown – the teas that have been keeping me sane! I recommend stocking up on these for any future global pandemics…

My Top Teas Of Lockdown

Yorkshire Tea

Okay, the classic English breakfast tea doesn’t get any better than a cuppa of Yorkshire Tea. This is a tea for all seasons. In my office, any other teabags are treated as pariahs and left unused until we run out of all other options (which, to be fair, happens regularly – we’re not that organised). Now, maybe that’s because our head of service is from Yorkshire. But maybe it’s also because Yorkshire Tea is the best…

Jenier Peppermint Herbal Tea

Now, we all know that the best kind of mint tea is fresh mint tea with leaves picked from the garden. But my favourite teabag mint tea is Jenier Peppermint Herbal Tea. I discovered the brand (and the tea) through a subscription to the Tea and Book Club, gifted to me by my father-in-law, and it’s got a great fresh mint flavour for a dried tea. Peppermint tea is my go-to choice for a bloated tummy, which is happening a lot in lockdown as I stuff my face every day.

Pukka Night Time Tea

My husband and I always refer to this as “sleepy time tea”, even though that’s not actually it’s name. Well, frankly Pukka missed a trick naming it. We are constantly tired at the moment thanks to Little Man, but if we want to wind down and chill out before bed, especially if the wee fella has been stressing us out all day (and when doesn’t he), then Night Time Tea is a great choice. Its gentle oaty, floral flavour chills you right out.

Sainsbury’s Hot Cross Bun Tea

Sainsbury’s launched an own-brand Hot Cross Bun Tea this year for Easter and I loved it! It’s a rooibus base, with lots of orange, lemon and spice flavor (light on the clove, heavy on the cinnamon – just how I like it). It’s a great caffeine free alternative to a breakfast tea when you fancy something with a hearty flavour but you’re going to bed soon. Sadly it was only around for Easter so I’m hoping they bring it back next year.

Medical Mystery: An Update
health · medication · pituitary

Medical Mystery: An Update

The Sickly Mama1 Comment
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So alas, I am once again in the position of being a medical mystery… Now, I love a murder mystery, preferably an Agatha Christie. But the only medical mystery show I’ve ever watched was House M.D., in which the patients invariably had to almost die before their doctors worked out that they did not, in fact, have lupus. I’m not so keen on the near-death approach to diagnosis, if I’m honest.

So back in early April, I re-started my medication (cabergoline). I had stopped it in late pregnancy in the hope of breastfeeding, but the symptoms of my TSHoma tumour returned after a few months, so I had to start taking it again.

As per usual, the doctors wanted to monitor my thyroid levels. My tumour produces Thyroid Stimulating Hormone (TSH – hence why it’s called a TSHoma), which causes my thyroid gland to over-produce thyroid hormones. So as the medication works, you would expect my TSH levels to reduce, and my thyroid hormone levels to reduce too.

Because my health issues relate to the endocrine system, all the twists and turns of this mystery thriller basically just involve different blood test results. For some reason no major TV networks have shown interest in picking up a pilot based on this concept.

So: my TSH levels have indeed been reducing since re-starting my medication. But my thyroid hormone levels have actually been increasing. Quite a lot. I now have thyroid levels way above the normal range. This makes no sense if the high thyroid levels are caused by the pituitary tumour.

Cue dramatic music. Dr House gives the camera a quizzical look.

Interchangeable Hot Younger Doctor 1: “Could it be lupus?”

The other interchangeable hot young doctors smile and roll their eyes. They don’t know much, but they know that, for some reason, it’s never lupus.

Instead, it looks as though something else is causing the raised thyroid levels. This could potentially be a thyroid condition like Graves Disease, which is an autoimmune illness that causes the body to over produce thyroid hormone, or potentially a growth on my thyroid gland itself. We don’t know. At first, I think the doctors hoped it was just a weird blip on my blood test results, but repeat testing has shown the same pattern.

So my doctors have put me on a higher dose of cabergoline, to make sure that the TSHoma tumour on my pituitary gland is definitely being treated, and ordered some more blood tests to see if it could be Graves Disease. I’m hoping to hear from them this week to find out what we know and what other testing needs to be done. I’m guessing they’ll want to rule out lupus.

A quick search online shows there are only four known cases ever of someone with my condition (TSHoma) also having Graves Disease. One of the trickiest things when you have such a rare condition is that when something out of the ordinary like this happens, you’re just flying blind. No-one really knows what’s going on. Sadly, it seems unlikely that a grizzled, curmudgeonly doctor will reveal he’s known what’s going on the whole time and has just been holding the information back for 50 minutes in order to build dramatic tension.

So please keep your fingers crossed for me, and I’ll update you as soon as we start to unravel this medical mystery…

My Experience of Asthma in Pregnancy and Birth
asthma · birth · health · pituitary · pregnancy

My Experience of Asthma in Pregnancy and Birth

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Well, I’ve written about my experiences with hypermobility in pregnancy and birth, and again about how my pituitary tumour impacted my pregnancy and birth. So it seems logical to write about how my asthma impacted me as well, and complete the trilogy… How did pregnancy affect my asthma?

My Experience of Asthma in Pregnancy

But I’ve been in two minds about writing this post, because actually my asthma barely affected me at all! In fact I noticed a massive improvement in my asthma symptoms while I was pregnant. Normally they’re worst around June; my asthma seems to be particularly triggered by hayfever and then made worse by humid weather. Last year when I was pregnant, I spent the end of May in Japan at a family wedding, and when I got back I realised my asthma seemed much better than usual. Seems strange, huh?

Does pregnancy make asthma better or worse?

I spoke to my asthma nurse about this recently when I went for a review (she’s the best! Shout out to all the awesome asthma nurses out there). She said that roughly a third of people with asthma notice an improvement of their symptoms in pregnancy, a third notice a deterioration, and for the rest there’s no change. So I guess I was one of the lucky 33%. I felt so crap being pregnant anyway, I’m so glad I didn’t have to deal with my asthma playing up too.

Why does pregnancy affect my asthma?

Looking online, there are plenty of asthma sites which also advise that asthma may improve or worsen in pregnancy. But none of them seem to explain why. I assume it’s the usual “pregnancy hormones” explanation, which is so vague as to be no explanation at all. So I’m awarding a gold star to any health professional who can let me know in the comments below why specifically it is that asthma is so variable in pregnancy!

Does asthma affect you when giving birth?

I also didn’t find that my asthma affected the birthing process, fortunately. As I have exercise-induced asthma, I did wonder whether labour could trigger my asthma at all. I took my inhalers to the hospital with me (make sure you have spares in your hospital bag just in case!). But luckily, I didn’t need them during the birth.

In fact, apparently asthma attacks during labour are very rare, which is believed to be because of the natural steroids that your body produces during labour. The Asthma UK website has more information about asthma and birth, which may also reassure you.

What were your experiences of asthma during pregnancy and birth? Let me know in the comments!

My Experience of Pituitary Tumour and Pregnancy
medication

My Experience of Pituitary Tumour and Pregnancy

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I’ve already written about my experience of hypermobility and pregnancy (and birth!), so it feels like time to write about my experience with my pituitary tumour (pituitary adenoma).

My Experience of Pituitary Tumour And Pregnancy

Before trying for a baby

My husband and I went to talk to my endocrinologists about the possibility of trying for a baby over a year before we actually wanted to start trying (we had a wedding in between!). And it was just as well we did, because there was a lot of planning involved…

At the time, I was taking a medication called Somatuline Autogel (lanreotide) for my pituitary adenoma. There’s no data on its safeness (or otherwise) in pregnancy, and in fact it isn’t even technically licensed for my condition. I have a pituitary tumour which produces thyroid stimulating hormone (TSHoma), and they’re so rare that there actually isn’t any medication licensed for the condition. However, I’ve taken lanreotide on-and-off for nearly ten years, and fortunately it always worked well to control my symptoms.

But because it’s not known how safe lanreotide is in pregnancy, my doctors were keen to see whether I could manage without the medication during a pregnancy – or whether my thyroid levels would start going up again. So I agreed to do a trial period off the medication. All went well for a couple of months, and then I could feel my symptoms coming back, and blood tests confirmed that my thyroid levels had risen again. So, a new plan was needed.

My doctors then suggested trying cabergoline, a drug that’s used for a different kind of pituitary adenoma called a prolactinoma. They estimated to me that, based on their previous experience, there was about a one in five chance of it working for my tumour as well. And although cabergoline is not licensed for use in pregnancy, there have been more case studies etc. of women using it in pregnancy, so my endocrinologists thought it would be a better bet than lanreotide… If it worked for me.

So I have it a go… And it worked! To my surprise, it was just as good as lanreotide, if not better because it’s much more convenient. With cabergoline, I take two tablets per week (weird schedule, I know), whereas with the Somatuline Autogel it was an injection once a month which my husband had to do, and we had to keep the injections refrigerated beforehand. Plus, with Somatuline, because it messes with the function of your gallbladder, I had to eat an extremely low fat diet for 5 days out of each month, which could be a real pain when we were out and about. So not having to do that was a real bonus!

During Pregnancy

During the course of my pregnancy, I had to have blood tests once a month to check on my thyroid levels. Fortunately, they were well controlled throughout the whole time. I also had some bonus hospital visits so my endocrinologists could check up on other symptoms. Because the pituitary naturally enlarges during pregnancy, they like to check up on your visual fields to ensure that between that and the tumour, it’s not putting pressure on your optic nerve.

Planning for Breastfeeding

I really wanted to try breastfeeding, but being on cabergoline meant that could be tricky. Cabergoline inhibits the production of prolactin – the hormone that stimulates the production of breastmilk. My doctors recommended that I stop taking cabergoline six weeks before my due date, to give myself the best chance of breastfeeding, as the drug takes about four weeks to leave your system. Hopefully I would then be able to breastfeed for a couple of months before my symptoms returned and I had to go back on the medication.

So, I duly stopped taking cabergoline at 34 weeks… And then Little Man showed up at 37 weeks, rather earlier than expected! Breastfeeding didn’t work out for us. Although I made colostrum, my milk never came in, and it’s not clear whether it’s because the cabergoline wasn’t out of my system yet, or the stress and separation when Little Man ended up in intensive care for several days.

Planning for the Birth with a Pituitary Tumour

With regards to the birth, my endocrinologists were confident I could have a normal birth. Because the pituitary is involved in producing the hormones that kickstart childbirth, I did ask whether there was any reason to think that I might be less likely to go into labour naturally. But the doctors said that there was no evidence that women with pituitary tumours are more likely to need inductions.

The doctors did specifically write in my notes that I was allowed to have an epidural, as they said sometimes people can mistakenly think it’s not allowed after having transsphenoidal pituitary surgery. They also advised that there should be steroids on hand, to be administered if I experienced any unexplained low blood pressure, in which case an adrenal crisis should be suspected. Fortunately it wasn’t needed.

What advice do I have for other women with a pituitary tumour who are trying for children?

After two transsphenoidal pituitary surgeries, there was always a risk that the function of my pituitary gland had been damaged by the surgery and I might find it difficult to conceive. Fortunately we were very lucky and I was able to get pregnant. Because we knew it might take a while, we planned a long time ahead, and I’d definitely recommend talking to your endocrine team to work out a plan of action well in advance of when you want to start trying to conceive.

Trying me on/ off various treatments took over a year from when we first discussed it, due to delays from the hospital’s administration and us deciding to go back on my regular medication for the three month period of our wedding and honeymoon, to make sure I felt well for it. If we had been actively wanting to start trying for a baby, that would have felt incredibly frustrating and slow. It was frustrating enough even when we knew we didn’t want to start trying until after the wedding!

Do you have any experience of pregnancy and birth with a pituitary tumour which you can share? Let me know in the comments!

Why We’re Trying Lactose Free Formula
child development

Why We’re Trying Lactose Free Formula

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So as regular readers will know, Little Man has been having a lot of tummy trouble recently, and it’s just been getting worse. He’s really windy but struggles to get the wind out, and it’s been keeping him up at night and waking him up regularly when he does manage to sleep. He’s also had a bit of constipation, despite our efforts to keep him well hydrated. We’ve tried everything we can think of – changing his formula, using infant colic drops, making sure to burp him and wind him regularly, etc etc. But nothing seems to make much of a difference.

As a result, it’s been a tough few weeks, especially combined with his teething issues. Little Man has gone from sleeping through til about 3/4am and then having a slightly fitful sleep after that, to more or less having a fitful sleep through the whole night. Some nights I’ve been up with him much more often than every hour. So he’s been super grumpy, and to be honest, so have I!

So we went to the doctor’s and they recommended changing formula. As we’d already changed formula once, they suggested trying a lactose-free formula. Apparently if it does work, it doesn’t necessarily mean that Little Man is lactose intolerant, but the change might be helpful for him. I guess a lactose free formula is about as big a change as you can have!

So we’re crossing our fingers a) that it works, and b) that he’s not actually got a lactose intolerance! Apparently some babies develop temporary lactose intolerance after tummy upsets or if they were born prematurely, and it can be something they grow out of. Little Man did have some issues with some kind of tummy bug which really upset his stomach a while ago, so it’s not impossible that this could have caused a temporary intolerance which just hasn’t settled yet. I’ll keep you updated on our progress and how he gets on with his lactose free formula!

Post-Partum Body Bullshit
birth · health · parenting · post-partum · pregnancy

Post-Partum Body Bullshit

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After having a baby, you expect to have a tummy and some weight to lose. That much is expected! But there’s so much weird body stuff that lingers after pregnancy that I didn’t really know about. I suppose that other than the weight, possible stretch marks, and any scars from c-sections or episiotomy etc., I assumed everything else would go back to normal. Oh, how wrong I was!

And even though some of it is minor in the grand scheme of things, I think it’s still okay to find it difficult that your body has changed in ways you weren’t expecting. So, I thought I’d write about it…

Post-Partum Body Bullshit: Weird Stuff Your Body Does After Pregnancy

Post-Partum Hairloss

This one is the worst! I have had issues with hair loss for over ten years, thanks to my pituitary issues. For the last four years or so, since my symptoms have mostly been under control with medication, my hair has been growing back slowly, although it’s still a bit patchy in places. But when I was pregnant, my hair improved so much! It got thick and shiny and generally great. In fact it was pretty much the only good thing about being pregnant (other than getting the baby at the end, obviously!)

Hair tends to get thicker during pregnancy, but not because you’re growing more hair – actually, it’s because it’s falling out less. Strange but true. Of course, what that means is that sooner or later, your scalp needs to catch up on all the hair it would normally have lost during those nine months of pregnancy. Enter post-partum hair loss, which normally kicks in about three months after giving birth.

Even though I know it’s totally normal, I’m still finding it a bit stressful to be pulling handfuls of hair out of my hairbrush on a regular basis. It just takes me back to when my own hair loss was really really bad before my tumor was diagnosed, which was a horrible, stressful time.

Annoyingly, my amazing pregnancy lips, which to be fair also looked great and incredibly plump during pregnancy, vanished almost as soon as Little Man was out! Now I’m back to relying on lipstick again…

Moles and Skin Tags

I’ve always had a lot of moles and freckles, but when I got pregnant they went into overdrive! New moles and skin tags appeared everywhere, often seemingly overnight, and they’re still here four months after having had the baby. They particularly seem to have arisen on my chest, back, and belly. Existing moles have also grown, and in some cases turned kind of scaly (ew, sorry).

The development of moles and skin tags in pregnancy is associated with all the oestrogen sloshing around your body. I’ve had my moles checked over by a doctor and she’s said that the changes appear normal and nothing to worry about. But I can’t help but be unimpressed with this new weird bobbly skin.

Weird Tan Lines

So there’s a thing that happens in pregnancy called the linea nigra, a dark line of hyperpigmented skin that runs down your belly. Typically it shows up around the second trimester, caused by pregnancy hormones oestrogen and progesterone, which stimulate the production of melanin in your skin. You may also notice skin darkening on your face and elsewhere as a result of the same process.

When you read about linea nigra online, most sites say it should disappear a few months after delivery. Well, I’m four months out and mine hasn’t faded a bit despite not getting any sunshine. And there doesn’t seem to be much consensus on what to expect, because some other sites say that the line may take a year to fade – or never go away at all.


As well as my linea nigra, I seem to have developed a patch of unpigmented skin on the right hand side of my belly. I’m quite pale so it’s not super noticeable, but it’s big enough that you can see it if you look for it. I haven’t found anything online that suggests that this is a thing which happens with pregnancy, but it definitely wasn’t there before!

What weird post-partum side effects have you had? Let me know in the comments!

Fatigue vs. Tiredness (It’s Not The Same Thing!)
fatigue · hypermobility

Fatigue vs. Tiredness (It’s Not The Same Thing!)

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The other day, I was sat with Little Man on my lap I’m the evening. This is, of course, a common occurrence. He’d been very difficult all day with an upset tummy and teething pain. I’d just been playing on the floor with him to distract him, doing tummy time and walking practice and licking Mr Bun Bun (the best part of playtime, of course). I sat back down with him in the armchair, and five minutes later I completely ran out of energy. And I knew I’d overdone it.

I get tired like everyone else, but I also get fatigued, thanks to my medical conditions, and although they sound similar, they’re not the same thing. These days I’m pretty good at managing my activity levels to avoid getting fatigued, but being a parent creates a new challenge in that respect, as you can’t plan for when the little man decides to kick off! So, what are the differences between normal tiredness and fatigue? How can you tell them apart?

Fatigue vs. Tiredness

How is fatigue different from tiredness?

I think a lot of people who haven’t had a chronic illness think that having fatigue is the same as being tired. Which is understandable if it’s not something you’ve experienced! Fatigue does indeed involve feeling tired, but also often includes:

  • Aching muscles
  • Difficulty concentrating or “brain fog”
  • Feeling physically weak
  • Difficulty with decision making
  • Slow responses
  • Poor memory

Plus, the sensation of tiredness/exhaustion is often quite extreme.

As well as having more extensive and severe symptoms than tiredness, fatigue is different in terms of what causes it and how you fix it. It can be caused by long-term illness, including mental illness, or stress.

Most significantly, it often doesn’t resolve with sleep, and the feeling of tiredness is disproportionate to the level of activity you’ve been doing. As a result, it can be quite tricky to understand where your limits are and not go too far. In my case, the other day I was completely surprised that I had apparently overdone it and hit a fatigue wall. I felt like hadn’t had much more of a strenuous day than usual, but obviously it was enough to tip me over the edge.

My experience of fatigue

Firstly I should say that I’m fortunate because my fatigue has improved a lot over the past few years. I first experienced fatigue when I had glandular fever at university and afterwards was left with post-viral fatigue syndrome for a number of months. Then once that started improving, my pituitary tumour started giving me more symptoms…including fatigue!

It’s gradually improved since my second pituitary surgery, when I started taking medication to treat my tumour (lanreotide). The improvement has been so slow as to be imperceptible, but looking back five years it’s a huge change in retrospect. I think as well that I’ve got much better at managing my fatigue in general. I can usually do a busy day or a late night, as long as I have nothing to do the next day. I’m also fortunate that my husband is really helpful at understanding and helping me manage my symptoms.

For me, it’s about ensuring enough downtime around periods of activity. It doesn’t need to be sleep necessarily, but just rest time without much physical or mental exercise. For instance, if I’m doing housework, I need to make sure I sit and have a short break every 15 – 20 minutes or so. If I don’t, I can end up so exhausted I’m useless for the rest of the day. When I got married, my husband had to act as a consultant for my bridesmaids organising my hen do, to ensure that it was enough of a balance of things that I’d be able to make it to the end!

When I’m tired, I can usually power through. Also, even severe tiredness tends to come and go over time, so I’ll feel better for half an hour before the tiredness hits again. When I’ve got to the point of being fatigued, though, there’s no powering through. I am completely useless.

What’s your experience of fatigue? Let me know in the comments!

Why Are Babies’ Digestive Systems So Utterly Useless?
child development

Why Are Babies’ Digestive Systems So Utterly Useless?

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I can’t be the only parent who has looked at their beloved baby, covered in vomit at 4am after waking up crying because of trapped wind, and wondered… Why are babies born with such completely useless digestive systems? Are we the only mammal this bad at eating and pooping? Do baby monkeys get colic? And when will my child finally be able to get through a day without continuously leaking milk curds from the sides of his mouth like a pint-sized Vesuvius?

Reflux and Spitting Up

In young babies, the lower oesophageal sphincter, which separates the stomach from the oesophagus, is weak and immature, and consequently does a terrible job of keeping the contents of baby’s stomach where they’re supposed to be.

Additionally, it can take a while before baby’s stomach gets into the swing of it’s normal squeezing pattern, meaning that milk may sit in the stomach longer than normal.

The good news is that reflux should subside in around four to twelve months!

Painful Wind

Babies are rubbish at eating properly, so they take in a lot of air when feeding. Then because they just lie around like lazy little beached porpoises all day, they can’t easily eliminate the gas via the normal route of burps and farts.

Tiny bubbles of gas then cause pressure and stomach pain. And that causes very grumpy babies. Here’s the irony: crying babies also often take in excess air. Which causes gassy pain. Which causes more crying. You see where I’m going with this. It’s kind of a vicious cycle.

In theory, this should improve around 3 – 4 months of age, or when the baby starts rolling on his own, as this helps to get the gas out.

Tummy Upsets

Humans are supposed to have a (delightfully named) “digestive mucosal lining” or layer of mucous, which protects their digestive tract from microbes and other contaminants in food. In babies, this layer is thin and does a bad job at protecting their gastrointestinal tract from infection.

Weaning

Current recommendations are to avoid weaning babies until they are about six months old. Why? I found it really interesting to read about this:

  • Babies can’t produce digestive enzymes to digest starches until they’re six months old.
  • They don’t produce enough enzymes to digest complex carbohydrates until nearly seven months.
  • Their bile and lipase for digesting fats don’t reach full levels until six months.
  • Until about six months, babies’ guts allow large molecules to pass directly into the bloodstream. This is to allow antibodies from mum’s breastmilk to pass into baby’s blood. But it also allows larger molecules from solid food through, which could create a risk of infection or allergy.

Little Man has had a bad tummy ever since we got him home from hospital. I think a lot of it is due to him taking in air when he eats, because when he was in intensive care and then on the ward with me, we fed him through a naso-gastric tube, and he didn’t vomit as much or have anything like as much trouble with his tummy. Can’t wait until it all settles down, but it doesnt seem like it will be happening any time soon…

My Experience of Joint Hypermobility Spectrum Disorder and Pregnancy
hypermobility

My Experience of Joint Hypermobility Spectrum Disorder and Pregnancy

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I thought it might be useful to write a post about my experience of Hypermobility Spectrum Disorder (formerly known as Joint Hypermobility Syndrome, apparently rheumatologists like renaming stuff) during pregnancy, as I would have found it helpful to read something like this when I was pregnant!

What is hypermobility spectrum disorder?

Basically it’s an overarching term for a group of conditions relating to joint hypermobility – i.e. in simplest terms, your joints extend more than they’re supposed to. I was diagnosed with it when I was 17, although at that point they called it joint hypermobility syndrome.

I actually meet the diagnostic criteria for a condition called hypermobile Ehlers-Danlos Syndrome (hEDS) although I’ve never been formally diagnosed with it. I did once see a dermatologist about something totally unrelated, and as it turns out he specialised in the dermatology of hEDS and was very excited to run a bunch of tests on my skin.

Hypermobility Spectrum Disorder and Pregnancy

How can hypermobility affect pregnancy and birth?

I was referred to an obstetrician once I was pregnant, thanks to all my stupid medical conditions, and she discussed the key potential issues from my hypermobility spectrum disorder and pregnancy, which basically are:

  • Risk of the birth progressing quite quickly once you reach 4cm dilated.
  • Risk of poor or slow wound healing.
  • Risk of resistance to local anaesthetic.
  • Risk of waters breaking early.
  • Risk of additional pain during pregnancy due to the extra weight and hormone changes placing stress on the joints.

So which of these issues did I actually encounter? I’ll go over them in order…

Increased joint pain during pregnancy

Oh boy did I get this one. It actually started very early too, around week 12 or 13 – well before any significant weight gain, so I assume the issue was caused by the hormone relaxin, which your body produces during pregnancy and causes joints to loosen. If you already have loose, hypermobile joints, that’s not great.

You’re recommended to sleep on your side during pregnancy, but I found that when I slept on one side, the hip on the bottom would gradually partially dislocate during the night and it would eventually wake me up with the pain. Then I’d swap sides, and it would repeat on the other side. By the end of the night I would only be getting maybe half an hour on each side before the pain woke me up, and my joints were so sore and stiff in the mornings. It was not fun, and it got worse as my baby bump got bigger.

I did, however, find that physiotherapy really helped. I saw a great NHS physio who have me exercises to strengthen the muscles around my hips and it made a massive difference to my pain levels, although it didn’t cure it completely.

I’m now four months out from the birth and I would say that although the sleeping pain resolved basically as soon as I have birth, I can feel that the pregnancy has had a lasting effect on my left hip joint, which feels noticeably less stable and more often painful than previously.

Premature rupture of membranes

My waters broke at 36 weeks and 5 days, which is technically premature, but only just (37 weeks is technically full term). Premature rupture of membranes (waters breaking early, if you’re not a doctor) is a risk of hypermobility, so it’s possible that it was related.

Hypermobility and rapid labour

I didn’t go into labor naturally but was induced due to my waters breaking. I was put on the syntocinon drip and told to expect to progress by dilating about half a centimetre per hour. The midwife said she would check on my dilation at about the four hour mark, and that she expected me to progress about half a centimetre dilation per hour.

Two hours later I was in massive amounts of pain, they weren’t letting me have gas and air (because they said you had to be 4cm dilated first) and I felt that I definitely couldn’t cope with another 12 hours or more of it, so I asked for an epidural. The midwife put in the request, but the anaesthetists were in theatre so it wasn’t going to happen any time soon. Shortly afterwards, I got the very distinct feeling that my body was starting to push. I told the midwife but she didn’t seem that bothered. Fortunately, my husband then insisted that she check how dilated I was. She had a look, realised I was fully dilated and that I was indeed pushing.

Then it was panic stations! The midwife apparently had to write loads of stuff on the computer at this point, and thus had to call in a second midwife to take over with me.

Although the dilation stage had happened really quickly, the pushing stage did not. Fortunately they did let me have gas and air at last, which helped a lot with the pain.

They wanted the baby out within two hours of starting pushing (not sure if this is standard or due to the fact my waters had broken a long time before and they were worried about infection). At some point, a doctor appeared and said that if I didn’t make good progress in the next two pushes, they were going to do an emergency caesarian. Seemingly I did make enough progress, because she went away again. Then, some time later, a couple of other doctors appeared and said I had two pushes before they would do a ventouse (suction cup) delivery.

Resistance to anaesthetic

In order to get the baby out, they had to do an episiotsomy, which then needed stitches. They gave me local anaesthetic before the stitches, but it really didn’t work, I kept telling the doctor doing the stitching that I could feel it. So I guess I did have the resistance to local anaesthetic issue.

They didn’t seem to be clued up on my hypermobility and the plan to manage it during the birth, because they also used the normal dissolvable thread for the stitches, instead of the silk sutures I was supposed to have, to assist in case of poor wound healing. The dissolvable stitches were okay for me in the end fortunately. One stitch broke, but that could have been because I did so much walking to and from the neonatal intensive care unit in the week after Little Man was born (he developed a very serious case of jaundice and had to go into NICU). I didn’t notice any issues with healing, thankfully.

To be fair, the mess up with the stitches and the insufficient local anaesthetic may have been due to the fact that after Little Man arrived, I had a big post-partum haemorrhage. The alarms went off and lots of doctors and nurses suddenly appeared in the room, luckily I didn’t need a blood transfusion but was put on a drip and super woozy. So it was all a bit crazy in the delivery room, and I can see how things were missed. But I did think it was disappointing that, despite having flagged a lot of these potential issues well before the birth, we were still left with them not being managed very well – especially the rapid labour. Looking back I am annoyed that I was in so much pain with no pain relief and they didn’t even think to check my dilation to see whether things had progressed further than they were expecting.

What advice do I have for other hypermobile mamas-to-be?

If you’re pregnant and have hypermobility or hEDS, I recommend flagging it early to the hospital, but being prepared to advocate for yourself in the delivery room. It’s hard to do when you’re actually in labour yourself, so make sure your birth partner knows about your hypermobility and how it can affect pregancy and birth, and that they’re confident to advocate for you. I dread to think how long I would have been pushing before they thought to check my dilation, if it hadn’t been for my husband advocating for me.

I also highly recommend physiotherapy, as early in the pregnancy as possible. A lot of hospitals have long waiting lists for physio, so try to get on the list as early as possible.

Are you a mum who’s hypermobile? Let me know about your experiences with pregnancy and birth in the comments!

It Takes A Village To Raise A Child: Thank You
baby · child development · colic · parenting · sleeping · teething

It Takes A Village To Raise A Child: Thank You

The Sickly Mama1 Comment
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We’ve been having a pretty bad time the last couple of weeks with Little Man. He has long had bad trouble with wind that wakes him up at night and upsets him regularly. But his teething has now got really bad as well.

We’re currently struggling to feed him at all, because any time the bottle goes near his mouth, he goes through the roof, even with having given him Calpol and teething gel – which obviously we can’t give every feed. Plus it’s waking him up every 40 – 60 minutes throughout the night, so we’re seriously missing out on sleep as well, and thanks to lockdown we don’t have access to any external or family support that we would normally have. So it’s tough. And it means stressing that I’m not doing a good enough job… The classic mum guilt.

One thing that is really positive though is all the help that we’ve had from friends and family who have shared some great tips and ideas for things that might help. Ideas from using a teething glove, to freezing ice cubes out of formula to rub on sore gums, to trying herbal teething powders or teas, and trying the next year size up, have all come from our friends, family and colleagues. Even if they don’t all work, at least we can feel like we’re being proactive in how we’re trying to deal with it and help the poor little dude.

It’s especially appreciated at this time. Normally, I would be going to baby groups and socialising with other mums and chatting about what they do or what products they use, but I can’t do that at the moment thanks to the lockdown. It can feel really isolating. So I really want to thank everyone who’s taken the time to share their experiences and their advice. Not only is it really useful, but it makes me feel better to know that other people have had the same issues. When you’re stuck in the house with a crying baby who won’t eat or sleep, it’s easy to get worried about what is it isn’t normal. It really brings to mind the old adage that it takes a village to raise a child. We’re very lucky to have you all in our village.

So thank you, everyone. And thanks also to everyone who’s just checked in on us or let us have a rant or even sent a gift. These are weird and challenging times to have a new baby, as if having a baby wasn’t weird and challenging enough…